Céline Dion has ‘lost control of her muscles' as she keeps enduring stiff person syndrome. Picture: REUTERS/Eckehard Schulz/Pool
Céline Dion has “lost control of her muscles” as she keeps enduring stiff person syndrome.
The ‘My Heart Will Go On’ singer, 55, revealed her diagnosis of the condition in December 2022, which forced her to pull the plug on her ‘Courage World Tour’, and her sister Claudette Dion has now shared a distressing update on her sibling’s health battle.
Claudette, 74, told Canada’s 7 Jours about how Dion has “lost control of her muscles”: “What breaks my heart is that she’s always been disciplined.
“She’s always worked hard. Our mother always told her, ‘You’re going to do it well. You’re going to do it properly.’”
Claudette added Dion still wants to perform despite her illness, saying: “It’s true that in both our dreams and hers, the goal is to return to the stage.
“In what capacity? I don’t know.”
In a rare social media post in October, Dion shared a set of photos of her posing with her three sons at an ice hockey match.
She captioned the images: “My boys and I had such a fun time visiting with the Montreal Canadiens after their hockey game with Vegas Golden Knights in Las Vegas Monday night.
“They played so well, what a game!! Thank you for meeting us after the game, guys! That was memorable for all of us. Have a great season! – Céline xx… .”
In several of the images, the singer was seen with her boys René-Charles, 22, and twins Nelson and Eddy, 13, who she had with her late husband, René Angélil.
Her update overjoyed fans, who filled her comments section with well-wishes and called her a “Queen”.
Dion was left devastated when her music producer husband René Angélil died in 2016 aged 73 after they were married for 22 years.
Her stiff person syndrome is a rare, progressive neurological disorder that can cause stiff muscles in the torso, arms and legs and affects about one in a million people.
Dion’s hockey game outing came two months after the performer’s sister said the star was suffering uncontrollable “spasms” due to her illness.